Hey everyone,
Hope you're all having the best July on record!
I want to thank you for the amazing support of our MCMF Challenge on CrowdRise... very cool! As shown in the sidebar, you've helped The Matt Cwiertny Memorial Foundation raise over $1400 so far - Awesome! Now, we're only $570 away from the $2000 mark.
The Challenge ends on July 15th. And for every $1000 raised on our MCMF Challenge page on CrowdRise, my husband, Eric, and I will donate $200 to the Be the Match Foundation through our "Gift the Gift of Life" project. We've already donated $200 to Be the Match for the first $1000 reached, so let's keep this going!
Only $570 to go until we reach $2000... who's going to help us get there? :D
Thank you so much for your incredible support! Let's help adolescents and young adults kick some EBV and EBV-associated diseases' butt.
Take Care,
Michele
The Pursuit of Photography, Music, and Necco Wafers. But Mostly, the Pursuit of Wiping Out EBV and EBV-Associated Diseases, Which Include Blood Cancers.
Showing posts with label Blood Cancers. Show all posts
Showing posts with label Blood Cancers. Show all posts
Thursday, July 5, 2012
Tuesday, June 12, 2012
Update: Over $1200 Raised for MCMF Challenge and $200 Donated to Be the Match
Hey everyone,
Exciting news: We're over the $1200 mark on our MCMF Challenge page! A huge THANK YOU to our donors for helping us reach that important milestone... You're all Amazing.
And for every $1000 raised on our MCMF Challenge page, Eric and I promised we would donate $200 to the Be the Match Foundation through our "Give the Gift of Life" project on CrowdRise... check out our donation here. Thanks again to everyone for helping us make a difference.
Let's keep this going... Only $794 until we reach $2000! We can do this. :)
Thank you!!
Michele
Exciting news: We're over the $1200 mark on our MCMF Challenge page! A huge THANK YOU to our donors for helping us reach that important milestone... You're all Amazing.
And for every $1000 raised on our MCMF Challenge page, Eric and I promised we would donate $200 to the Be the Match Foundation through our "Give the Gift of Life" project on CrowdRise... check out our donation here. Thanks again to everyone for helping us make a difference.
Let's keep this going... Only $794 until we reach $2000! We can do this. :)
Thank you!!
Michele
Wednesday, May 30, 2012
MCMF Challenge 2012 Update.
Hey guys,
Just an update:
As shown in the sidebar, we've almost hit $200 in our MCMF Challenge, only $41 to go! Can we reach that mark by tonight?
Also, very important to remember: My husband, Eric, and I will donate $200 to the Be the Match Foundation for every $1000 we raise on our MCMF Challenge page! Thank you so much for all of your amazing support. Let's make a difference.
For more information about the MCMF Challenge, please check out the previous post or our MCMF Challenge link on CrowdRise.
Thank you!
Michele
Just an update:
As shown in the sidebar, we've almost hit $200 in our MCMF Challenge, only $41 to go! Can we reach that mark by tonight?
Also, very important to remember: My husband, Eric, and I will donate $200 to the Be the Match Foundation for every $1000 we raise on our MCMF Challenge page! Thank you so much for all of your amazing support. Let's make a difference.
Thank you!
Michele
Tuesday, May 15, 2012
Michele and Eric's "MCMF Challenge 2012: May-July" on @crowdrise
So, here's the deal:
Eric and I started a new campaign to help the Matt Cwiertny Memorial Foundation raise at least $50K for a research grant. This campaign runs from May 15th - July 15th and the goal is $20,000.
For every $1,000 raised for the MCMF Challenge 2012: May-July, Eric and I will donate $200 to the Be the Match Foundation through our "Give the Gift of Life" project page. Be the Match is an AMAZING charity that helps saves lives by adding donors to the marrow registry, by offering relief to patients who are struggling with thousands in uninsured costs, and by investing in "research discoveries".
(click the "Give the Gift of Life" project link to read more about this important cause)
$1,000 raised for MCMF = $200 will be donated to Be the Match Foundation
$5,000 raised for MCMF = $1,000 will be donated to Be the Match Foundation
$10,000 raised for MCMF = $2,000 will be donated to Be the Match Foundation
$15,000 raised for MCMF = $3,000 will be donated to Be the Match Foundation
$20,000 raised for MCMF = $4,000 will be donated to Be the Match Foundation
Sound good? Then let's raise some funds and help save lives!
Who is Matt and why this matters:
Matt was a 22-year-old junior art director for Marshall Advertising, who loved the L.A. Galaxy soccer, A.S. Roma, the Flight of the Conchords, The Dandy Warhols, Jack’s Mannequin, The 88, and Will Ferrell movies, when he got a really bad case of mono. We thought he'd recovered until six months later when Matt started getting extraordinarily high fevers, his blood pressure dropped, and his blood counts cratered. His doctors were confounded, especially when they concluded it was not mono. It was only after he went into respiratory failure that his doctors at USC learned he suffered from EBV-induced Hemophagocytic Lymphohistiocytosis (EBV-HLH), a blood disorder affecting only 1 of every 1,000,000 persons (after a bone marrow biopsy, the doctors decided he'd had mono earlier). While EBV-HLH is not cancer, it acts and is treated like a cancer. The disorder destroys healthy blood cells, and is treated with chemotherapy, and a bone marrow transplant, if necessary. EBV-HLH often induces lymphoma, which it did in Matt. One month after his EBV-HLH diagnosis, Matt learned he was also battling NK T-Cell lymphoma, one of the most aggressive and least researched blood cancers there is.
In December 2008, Matt received his bone marrow transplant. While it temporarily put him in remission, his lymphoma returned in February 2009, and in June 2009, Matt learned it had returned in the form of an inoperable brain tumor. After chemo failed to put him in remission, Matt began radiation treatment. Before finishing it, he was readmitted to the City of Hope in late September 2009. At that time, Matt was in a weakened state, with his EBV levels extraordinarily high that it was debilitating to his liver and kidneys. Unfortunately, the doctors were unable to administer any treatment that could reverse the affects of the EBV and its impact on Matt’s vital organs… And at midnight on October 3, 2009, he passed away with his family surrounding him.
Please help us fund medical research for EBV and EBV-associated diseases, which include blood cancers. We need to raise at least $50,000 for a research grant and we're not quite there yet. We definitely can't reach this goal without everyone's help, so let's do this... for Matt and for other families. Thank you so much!
To learn more about the Matt Cwiertny Memorial Foundation and what we want to accomplish, please visit:http://www.mattcwiertnymemorialfoundation.com
Follow the Matt Cwiertny Memorial Foundation on Twitter at @MattCwiertnyMF
Or on Facebook here: https://www.facebook.com/mattcwiertnymemorialfoundation
Thank you.
Michele
Eric and I started a new campaign to help the Matt Cwiertny Memorial Foundation raise at least $50K for a research grant. This campaign runs from May 15th - July 15th and the goal is $20,000.
For every $1,000 raised for the MCMF Challenge 2012: May-July, Eric and I will donate $200 to the Be the Match Foundation through our "Give the Gift of Life" project page. Be the Match is an AMAZING charity that helps saves lives by adding donors to the marrow registry, by offering relief to patients who are struggling with thousands in uninsured costs, and by investing in "research discoveries".
(click the "Give the Gift of Life" project link to read more about this important cause)
$1,000 raised for MCMF = $200 will be donated to Be the Match Foundation
$5,000 raised for MCMF = $1,000 will be donated to Be the Match Foundation
$10,000 raised for MCMF = $2,000 will be donated to Be the Match Foundation
$15,000 raised for MCMF = $3,000 will be donated to Be the Match Foundation
$20,000 raised for MCMF = $4,000 will be donated to Be the Match Foundation
Sound good? Then let's raise some funds and help save lives!
Who is Matt and why this matters:
Matt was a 22-year-old junior art director for Marshall Advertising, who loved the L.A. Galaxy soccer, A.S. Roma, the Flight of the Conchords, The Dandy Warhols, Jack’s Mannequin, The 88, and Will Ferrell movies, when he got a really bad case of mono. We thought he'd recovered until six months later when Matt started getting extraordinarily high fevers, his blood pressure dropped, and his blood counts cratered. His doctors were confounded, especially when they concluded it was not mono. It was only after he went into respiratory failure that his doctors at USC learned he suffered from EBV-induced Hemophagocytic Lymphohistiocytosis (EBV-HLH), a blood disorder affecting only 1 of every 1,000,000 persons (after a bone marrow biopsy, the doctors decided he'd had mono earlier). While EBV-HLH is not cancer, it acts and is treated like a cancer. The disorder destroys healthy blood cells, and is treated with chemotherapy, and a bone marrow transplant, if necessary. EBV-HLH often induces lymphoma, which it did in Matt. One month after his EBV-HLH diagnosis, Matt learned he was also battling NK T-Cell lymphoma, one of the most aggressive and least researched blood cancers there is.
In December 2008, Matt received his bone marrow transplant. While it temporarily put him in remission, his lymphoma returned in February 2009, and in June 2009, Matt learned it had returned in the form of an inoperable brain tumor. After chemo failed to put him in remission, Matt began radiation treatment. Before finishing it, he was readmitted to the City of Hope in late September 2009. At that time, Matt was in a weakened state, with his EBV levels extraordinarily high that it was debilitating to his liver and kidneys. Unfortunately, the doctors were unable to administer any treatment that could reverse the affects of the EBV and its impact on Matt’s vital organs… And at midnight on October 3, 2009, he passed away with his family surrounding him.
Please help us fund medical research for EBV and EBV-associated diseases, which include blood cancers. We need to raise at least $50,000 for a research grant and we're not quite there yet. We definitely can't reach this goal without everyone's help, so let's do this... for Matt and for other families. Thank you so much!
To learn more about the Matt Cwiertny Memorial Foundation and what we want to accomplish, please visit:http://www.mattcwiertnymemorialfoundation.com
Follow the Matt Cwiertny Memorial Foundation on Twitter at @MattCwiertnyMF
Or on Facebook here: https://www.facebook.com/mattcwiertnymemorialfoundation
Thank you.
Michele
Monday, January 2, 2012
Happy New Year! And MCMF Holiday Challenge Getting Closer to $3K on @Crowdrise
Happy New Year! Here's to a very happy and healthy 2012.
Thank you very much to everyone for the amazing support of The Matt Cwiertny Memorial Foundation in 2011. We couldn't continue the fight against EBV and EBV-Associated Diseases in Matt's name without your help, so Thank You!! You're making a difference and helping us save lives. You're all incredible people.
On that note, we still have our MCMF Holiday Challenge on CrowdRise running until January 11th. Right now, we're only $867 from the $3K mark! Who will help us reach that milestone? Let's start off our 2012 research grant with a BANG and really push these first couple weeks of the new year.
Let's help find a CURE. Let's help other families.
Thank you,
Michele Cwiertny
To help out our MCMF Holiday Challenge, please click HERE.
Thank you very much to everyone for the amazing support of The Matt Cwiertny Memorial Foundation in 2011. We couldn't continue the fight against EBV and EBV-Associated Diseases in Matt's name without your help, so Thank You!! You're making a difference and helping us save lives. You're all incredible people.
On that note, we still have our MCMF Holiday Challenge on CrowdRise running until January 11th. Right now, we're only $867 from the $3K mark! Who will help us reach that milestone? Let's start off our 2012 research grant with a BANG and really push these first couple weeks of the new year.
Let's help find a CURE. Let's help other families.
Thank you,
Michele Cwiertny
To help out our MCMF Holiday Challenge, please click HERE.
Thursday, December 29, 2011
Over $2K Raised So Far for MCMF Holiday Challenge on @Crowdrise
Hey everyone,
Thank you so much for helping our MCMF Holiday Challenge reach the $2000 mark! We couldn't do this without you -- Thank You!! For those of you reading about this challenge for the first time, the MCMF Holiday Challenge is the Matt Cwiertny Memorial Foundation's newest project on CrowdRise.
Our next goal? To hit the $3,000 milestone! We can do this. Let's save lives and help find a CURE... Every bit will definitely make a difference.
We're so excited about this challenge, as Mozilla Firefox will be donating $25,000 to the charity that raises the most funds on CrowdRise between December 13th and January 11th... Soooo, we definitely need everyone's help. Yep, everyone's. Please join our team. Please donate. Please join our team AND donate AND tell everyone in the world all about it too.
Thank you again for your amazing support! You all totally ROCK. xo
Michele Cwiertny
Thank you so much for helping our MCMF Holiday Challenge reach the $2000 mark! We couldn't do this without you -- Thank You!! For those of you reading about this challenge for the first time, the MCMF Holiday Challenge is the Matt Cwiertny Memorial Foundation's newest project on CrowdRise.
Our next goal? To hit the $3,000 milestone! We can do this. Let's save lives and help find a CURE... Every bit will definitely make a difference.
We're so excited about this challenge, as Mozilla Firefox will be donating $25,000 to the charity that raises the most funds on CrowdRise between December 13th and January 11th... Soooo, we definitely need everyone's help. Yep, everyone's. Please join our team. Please donate. Please join our team AND donate AND tell everyone in the world all about it too.
Thank you again for your amazing support! You all totally ROCK. xo
Michele Cwiertny
Monday, December 26, 2011
Over $1800 Raised So Far for MCMF Holiday Challenge on @Crowdrise
Hey everyone,
Hope you're having a wonderful Holiday Season!
Just letting you know that our MCMF Holiday Challenge on CrowdRise has hit the $1800 mark -- Awesome! We're so, so close to $2,000... Who is going to help us reach that incredible milestone? :)
We're so excited about this challenge, as Mozilla Firefox will be donating $25,000 to the charity that raises the most funds on CrowdRise between December 13th and January 11th... Soooo, we definitely need everyone's help. Yep, everyone's. Please join our team. Please donate. Please join our team AND donate AND tell everyone in the world all about it too.
Thank you very much for your support! Without you, the Matt Cwiertny Memorial Foundation wouldn't be able to save lives and help find a CURE.
Hope you're having a wonderful Holiday Season!
Just letting you know that our MCMF Holiday Challenge on CrowdRise has hit the $1800 mark -- Awesome! We're so, so close to $2,000... Who is going to help us reach that incredible milestone? :)
We're so excited about this challenge, as Mozilla Firefox will be donating $25,000 to the charity that raises the most funds on CrowdRise between December 13th and January 11th... Soooo, we definitely need everyone's help. Yep, everyone's. Please join our team. Please donate. Please join our team AND donate AND tell everyone in the world all about it too.
Thank you very much for your support! Without you, the Matt Cwiertny Memorial Foundation wouldn't be able to save lives and help find a CURE.
Thank you!!
Michele
Thursday, December 22, 2011
Over $1500 Raised So Far for MCMF Holiday Challenge on @Crowdrise
So Awesome!
Thanks to our very generous donors, our MCMF Holiday Challenge, which benefits the Matt Cwiertny Memorial Foundation, has reached the $1500 mark! So, so great.
OK, so here's the new goal: Let's raise another $1K for the MCMF Holiday Challenge by this Sunday- Yay! Please help us save lives & find a CURE.
We're so excited about this challenge, as Mozilla Firefox will be donating $25,000 to the charity that raises the most funds on CrowdRise between December 13th and January 11th... Soooo, we definitely need everyone's help. Yep, everyone's. Please join our team. Please donate. Please join our team AND donate AND tell everyone in the world all about it too. :D
Thank you so much for your amazing support. You are all incredible people.
MC
Thanks to our very generous donors, our MCMF Holiday Challenge, which benefits the Matt Cwiertny Memorial Foundation, has reached the $1500 mark! So, so great.
OK, so here's the new goal: Let's raise another $1K for the MCMF Holiday Challenge by this Sunday- Yay! Please help us save lives & find a CURE.
We're so excited about this challenge, as Mozilla Firefox will be donating $25,000 to the charity that raises the most funds on CrowdRise between December 13th and January 11th... Soooo, we definitely need everyone's help. Yep, everyone's. Please join our team. Please donate. Please join our team AND donate AND tell everyone in the world all about it too. :D
Thank you so much for your amazing support. You are all incredible people.
MC
Tuesday, December 20, 2011
Over $1K Raised So Far for MCMF Holiday Challenge on @Crowdrise
Awesome! Our MCMF Holiday Challenge is off to a good start... We've raised over $1,000 so far and we have 23 days to go! Let's keep going and help find a CURE for EBV and EBV-Associated diseases, which include blood cancers. We can do this.
The Matt Cwiertny Memorial Foundation needs your help. Join our team. Donate. Join our team and donate. Tell everyone in world all about this so we can make a difference.
To help the Matt Cwiertny Memorial Foundation win the Mozilla Firefox Challenge and the $25,000 donation toward our 2012 grant, please click here:
MCMF HOLIDAY CHALLENGE
Thank you so much for your amazing support!
MC
P.S. To find out more about our MCMF Holiday Challenge, please click the link above or read the previous post on this blog. Thank you!
The Matt Cwiertny Memorial Foundation needs your help. Join our team. Donate. Join our team and donate. Tell everyone in world all about this so we can make a difference.
To help the Matt Cwiertny Memorial Foundation win the Mozilla Firefox Challenge and the $25,000 donation toward our 2012 grant, please click here:
MCMF HOLIDAY CHALLENGE
Thank you so much for your amazing support!
MC
P.S. To find out more about our MCMF Holiday Challenge, please click the link above or read the previous post on this blog. Thank you!
Monday, December 19, 2011
The MCMF Holiday Challenge on @Crowdrise
Please help the Matt Cwiertny Memorial Foundation win $25,000!
Mozilla Firefox will be donating $25,000 to the charity that raises the most money on Crowdrise between December 13th and January 11th... and how AWESOME would it be if the Matt Cwiertny Memorial Foundation won?! We can do this!!
PLEASE HELP! Join our team. Donate. Join our team and donate. Get your friends and family to join in and donate. We need everyone's help. Let's make certain our 2011 grant makes an impact and saves lives... and please, please help us start NEXT year's grant off with $25,000! Amazing, right?
Please help the Matt Cwiertny Memorial Foundation by donating here:
MCMF Holiday Challenge
So why does this matter so much to us? Here's why we're so passionate about this:
Matt was a 22-year-old junior art director for Marshall Advertising, who loved the L.A. Galaxy soccer, A.S. Roma, the Flight of the Conchords, The Dandy Warhols, Jack’s Mannequin, The 88, and Will Ferrell movies, when he got a really bad case of mono. We thought he'd recovered until six months later when Matt started getting extraordinarily high fevers, his blood pressure dropped, and his blood counts cratered. His doctors were confounded, especially when they concluded it was not mono. It was only after he went into respiratory failure that his doctors at USC learned he suffered from EBV-induced Hemophagocytic Lymphohistiocytosis (EBV-HLH), a blood disorder affecting only 1 of every 1,000,000 persons (after a bone marrow biopsy, the doctors decided he'd had mono earlier). While EBV-HLH is not cancer, it acts and is treated like a cancer. The disorder destroys healthy blood cells, and is treated with chemotherapy, and a bone marrow transplant, if necessary. EBV-HLH often induces lymphoma, which it did in Matt. One month after his EBV-HLH diagnosis, Matt learned he was also battling NK T-Cell lymphoma, one of the most aggressive and least researched blood cancers there is.
In December 2008, Matt received his bone marrow transplant. While it temporarily put him in remission, his lymphoma returned in February 2009, and in June 2009, Matt learned it had returned in the form of an inoperable brain tumor. After chemo failed to put him in remission, Matt began radiation treatment. Before finishing it, he was readmitted to the City of Hope in late September 2009. At that time, Matt was in a weakened state, with his EBV levels extraordinarily high that it was debilitating to his liver and kidneys. Unfortunately, the doctors were unable to administer any treatment that could reverse the affects of the EBV and its impact on Matt’s vital organs… And at midnight on October 3, 2009, he passed away with his family surrounding him.
Please help us fund medical research for EBV and EBV-associated diseases, including blood cancers. We need cures and NOW. Let's do this.
To learn more about the Matt Cwiertny Memorial Foundation and what we want to accomplish, please visit: http://www.mattcwiertnymemorialfoundation.com
Thank you!
Mozilla Firefox will be donating $25,000 to the charity that raises the most money on Crowdrise between December 13th and January 11th... and how AWESOME would it be if the Matt Cwiertny Memorial Foundation won?! We can do this!!
PLEASE HELP! Join our team. Donate. Join our team and donate. Get your friends and family to join in and donate. We need everyone's help. Let's make certain our 2011 grant makes an impact and saves lives... and please, please help us start NEXT year's grant off with $25,000! Amazing, right?
Please help the Matt Cwiertny Memorial Foundation by donating here:
MCMF Holiday Challenge
So why does this matter so much to us? Here's why we're so passionate about this:
Matt was a 22-year-old junior art director for Marshall Advertising, who loved the L.A. Galaxy soccer, A.S. Roma, the Flight of the Conchords, The Dandy Warhols, Jack’s Mannequin, The 88, and Will Ferrell movies, when he got a really bad case of mono. We thought he'd recovered until six months later when Matt started getting extraordinarily high fevers, his blood pressure dropped, and his blood counts cratered. His doctors were confounded, especially when they concluded it was not mono. It was only after he went into respiratory failure that his doctors at USC learned he suffered from EBV-induced Hemophagocytic Lymphohistiocytosis (EBV-HLH), a blood disorder affecting only 1 of every 1,000,000 persons (after a bone marrow biopsy, the doctors decided he'd had mono earlier). While EBV-HLH is not cancer, it acts and is treated like a cancer. The disorder destroys healthy blood cells, and is treated with chemotherapy, and a bone marrow transplant, if necessary. EBV-HLH often induces lymphoma, which it did in Matt. One month after his EBV-HLH diagnosis, Matt learned he was also battling NK T-Cell lymphoma, one of the most aggressive and least researched blood cancers there is.
In December 2008, Matt received his bone marrow transplant. While it temporarily put him in remission, his lymphoma returned in February 2009, and in June 2009, Matt learned it had returned in the form of an inoperable brain tumor. After chemo failed to put him in remission, Matt began radiation treatment. Before finishing it, he was readmitted to the City of Hope in late September 2009. At that time, Matt was in a weakened state, with his EBV levels extraordinarily high that it was debilitating to his liver and kidneys. Unfortunately, the doctors were unable to administer any treatment that could reverse the affects of the EBV and its impact on Matt’s vital organs… And at midnight on October 3, 2009, he passed away with his family surrounding him.
Please help us fund medical research for EBV and EBV-associated diseases, including blood cancers. We need cures and NOW. Let's do this.
To learn more about the Matt Cwiertny Memorial Foundation and what we want to accomplish, please visit: http://www.mattcwiertnymemorialfoundation.com
Thank you!
Thursday, September 15, 2011
New Goal: Raising Another $5,000 for the Matt Cwiertny Memorial Foundation
We want to raise an additional $5,000 toward this year's medical research grant for EBV and EBV-associated diseases, which include blood cancers.
We can totally do this by December 31st, but we need your help. Please donate and/ or JOIN OUR TEAM! We'll be holding contests, so you'll definitely want to keep checking back.
Follow the Matt Cwiertny Memorial Foundation on Twitter at @MattCwiertnyMF and you can follow me (Michele) at @MicheleCwiertny for contest announcements as well. :D
So why does this matter so much to my family and to me? Here's why we're so passionate about this:
Matt was a 22-year-old junior art director for Marshall Advertising, who loved the L.A. Galaxy soccer, A.S. Roma, the Flight of the Conchords, The Dandy Warhols, Jack’s Mannequin, The 88, and Will Ferrell movies, when he got a really bad case of mono. We thought he'd recovered until six months later when Matt started getting extraordinarily high fevers, his blood pressure dropped, and his blood counts cratered. His doctors were confounded, especially when they concluded it was not mono. It was only after he went into respiratory failure that his doctors at USC learned he suffered from EBV-induced Hemophagocytic Lymphohistiocytosis (EBV-HLH), a blood disorder affecting only 1 of every 1,000,000 persons (after a bone marrow biopsy, the doctors concluded he'd had mono earlier). While EBV-HLH is not cancer, it acts and is treated like a cancer. The disorder destroys healthy blood cells, and is treated with chemotherapy, and a bone marrow transplant, if necessary. EBV-HLH often induces lymphoma, which it did in Matt. One month after his EBV-HLH diagnosis, Matt learned he was also battling NK T-Cell lymphoma, one of the most aggressive and least researched blood cancers there is.
In December 2008, Matt received his bone marrow transplant. While it temporarily put him in remission, his lymphoma returned in February 2009, and in June 2009, Matt learned it had returned in the form of an inoperable brain tumor. After chemo failed to put him in remission, Matt began radiation treatment. Before finishing it, he was readmitted to the City of Hope in late September 2009. At that time, Matt was in a weakened state, with his EBV levels extraordinarily high that it was debilitating to his liver and kidneys. Unfortunately, the doctors were unable to administer any treatment that could reverse the affects of the EBV and its impact on Matt’s vital organs… And at midnight on October 3, 2009, he passed away with his family surrounding him.
Please help us fund medical research for EBV and EBV-associated diseases, including blood cancers. We need cures and NOW. Let's do this for Matt.
To Donate to the "Raising $5,000 for MCMF" fundraiser on Crowdrise, click HERE.
To learn more about the Matt Cwiertny Memorial Foundation and what we want to accomplish, please visit: http://www.mattcwiertnymemorialfoundation.com
Thank you.
P.S. And to read more about what Matt's friends and family have accomplished while raising funds for the Leukemia & Lymphoma Society over the past few years, please read Michele and Eric's "Rise" on Crowdrise -- Thank you.
We can totally do this by December 31st, but we need your help. Please donate and/ or JOIN OUR TEAM! We'll be holding contests, so you'll definitely want to keep checking back.
Follow the Matt Cwiertny Memorial Foundation on Twitter at @MattCwiertnyMF and you can follow me (Michele) at @MicheleCwiertny for contest announcements as well. :D
So why does this matter so much to my family and to me? Here's why we're so passionate about this:
Matt was a 22-year-old junior art director for Marshall Advertising, who loved the L.A. Galaxy soccer, A.S. Roma, the Flight of the Conchords, The Dandy Warhols, Jack’s Mannequin, The 88, and Will Ferrell movies, when he got a really bad case of mono. We thought he'd recovered until six months later when Matt started getting extraordinarily high fevers, his blood pressure dropped, and his blood counts cratered. His doctors were confounded, especially when they concluded it was not mono. It was only after he went into respiratory failure that his doctors at USC learned he suffered from EBV-induced Hemophagocytic Lymphohistiocytosis (EBV-HLH), a blood disorder affecting only 1 of every 1,000,000 persons (after a bone marrow biopsy, the doctors concluded he'd had mono earlier). While EBV-HLH is not cancer, it acts and is treated like a cancer. The disorder destroys healthy blood cells, and is treated with chemotherapy, and a bone marrow transplant, if necessary. EBV-HLH often induces lymphoma, which it did in Matt. One month after his EBV-HLH diagnosis, Matt learned he was also battling NK T-Cell lymphoma, one of the most aggressive and least researched blood cancers there is.
In December 2008, Matt received his bone marrow transplant. While it temporarily put him in remission, his lymphoma returned in February 2009, and in June 2009, Matt learned it had returned in the form of an inoperable brain tumor. After chemo failed to put him in remission, Matt began radiation treatment. Before finishing it, he was readmitted to the City of Hope in late September 2009. At that time, Matt was in a weakened state, with his EBV levels extraordinarily high that it was debilitating to his liver and kidneys. Unfortunately, the doctors were unable to administer any treatment that could reverse the affects of the EBV and its impact on Matt’s vital organs… And at midnight on October 3, 2009, he passed away with his family surrounding him.
Please help us fund medical research for EBV and EBV-associated diseases, including blood cancers. We need cures and NOW. Let's do this for Matt.
To Donate to the "Raising $5,000 for MCMF" fundraiser on Crowdrise, click HERE.
To learn more about the Matt Cwiertny Memorial Foundation and what we want to accomplish, please visit: http://www.mattcwiertnymemorialfoundation.com
Thank you.
P.S. And to read more about what Matt's friends and family have accomplished while raising funds for the Leukemia & Lymphoma Society over the past few years, please read Michele and Eric's "Rise" on Crowdrise -- Thank you.
Join Us on 10/15 at Fountain Bowl. Benefits the Matt Cwiertny Memorial Foundation
Join us at the Fountain Bowl Bowling Alley in Fountain Valley, CA on Saturday, October 15th! We're holding our 2nd Annual Bowl-A-Rama from 5:30 pm to 8:30 pm and it wouldn't be the same without you! Awesome, right? We're going to have 50/50 raffles, silent auction items, door prizes, bowling awards, good friends, food, and lots of fun!
All proceeds benefit the Matt Cwiertny Memorial Foundation, so grab 4-5 of your friends for your amazing team and get ready to blow us all away with your stellar bowling technique.
Place: Fountain Bowl Bowling Alley
Location: 17110 Brookhurst Street
Fountain Valley, CA 92708-3604 (714) 963-7888
Date: Saturday, October 15th, 2011
Time: 5:30 pm - 8:30 pm
Ticket Price to Bowl: $30 a person.
And hey, if you can't make it to the Fountain Bowl Bowling Alley on October 15th, then feel free to Donate HERE on Crowdrise and help us raise funds for the Matt Cwiertny Memorial Foundation. We'll definitely love you for that too. :)
Thank you so much!
All proceeds benefit the Matt Cwiertny Memorial Foundation, so grab 4-5 of your friends for your amazing team and get ready to blow us all away with your stellar bowling technique.
Place: Fountain Bowl Bowling Alley
Location: 17110 Brookhurst Street
Fountain Valley, CA 92708-3604 (714) 963-7888
Date: Saturday, October 15th, 2011
Time: 5:30 pm - 8:30 pm
Ticket Price to Bowl: $30 a person.
And hey, if you can't make it to the Fountain Bowl Bowling Alley on October 15th, then feel free to Donate HERE on Crowdrise and help us raise funds for the Matt Cwiertny Memorial Foundation. We'll definitely love you for that too. :)
Thank you so much!
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