The Matt Cwiertny Memorial Foundation is now on Facebook!
https://www.facebook.com/mattcwiertnymemorialfoundation
The Pursuit of Photography, Music, and Necco Wafers. But Mostly, the Pursuit of Wiping Out EBV and EBV-Associated Diseases, Which Include Blood Cancers.
Thursday, September 29, 2011
Thursday, September 15, 2011
New Goal: Raising Another $5,000 for the Matt Cwiertny Memorial Foundation
We want to raise an additional $5,000 toward this year's medical research grant for EBV and EBV-associated diseases, which include blood cancers.
We can totally do this by December 31st, but we need your help. Please donate and/ or JOIN OUR TEAM! We'll be holding contests, so you'll definitely want to keep checking back.
Follow the Matt Cwiertny Memorial Foundation on Twitter at @MattCwiertnyMF and you can follow me (Michele) at @MicheleCwiertny for contest announcements as well. :D
So why does this matter so much to my family and to me? Here's why we're so passionate about this:
Matt was a 22-year-old junior art director for Marshall Advertising, who loved the L.A. Galaxy soccer, A.S. Roma, the Flight of the Conchords, The Dandy Warhols, Jack’s Mannequin, The 88, and Will Ferrell movies, when he got a really bad case of mono. We thought he'd recovered until six months later when Matt started getting extraordinarily high fevers, his blood pressure dropped, and his blood counts cratered. His doctors were confounded, especially when they concluded it was not mono. It was only after he went into respiratory failure that his doctors at USC learned he suffered from EBV-induced Hemophagocytic Lymphohistiocytosis (EBV-HLH), a blood disorder affecting only 1 of every 1,000,000 persons (after a bone marrow biopsy, the doctors concluded he'd had mono earlier). While EBV-HLH is not cancer, it acts and is treated like a cancer. The disorder destroys healthy blood cells, and is treated with chemotherapy, and a bone marrow transplant, if necessary. EBV-HLH often induces lymphoma, which it did in Matt. One month after his EBV-HLH diagnosis, Matt learned he was also battling NK T-Cell lymphoma, one of the most aggressive and least researched blood cancers there is.
In December 2008, Matt received his bone marrow transplant. While it temporarily put him in remission, his lymphoma returned in February 2009, and in June 2009, Matt learned it had returned in the form of an inoperable brain tumor. After chemo failed to put him in remission, Matt began radiation treatment. Before finishing it, he was readmitted to the City of Hope in late September 2009. At that time, Matt was in a weakened state, with his EBV levels extraordinarily high that it was debilitating to his liver and kidneys. Unfortunately, the doctors were unable to administer any treatment that could reverse the affects of the EBV and its impact on Matt’s vital organs… And at midnight on October 3, 2009, he passed away with his family surrounding him.
Please help us fund medical research for EBV and EBV-associated diseases, including blood cancers. We need cures and NOW. Let's do this for Matt.
To Donate to the "Raising $5,000 for MCMF" fundraiser on Crowdrise, click HERE.
To learn more about the Matt Cwiertny Memorial Foundation and what we want to accomplish, please visit: http://www.mattcwiertnymemorialfoundation.com
Thank you.
P.S. And to read more about what Matt's friends and family have accomplished while raising funds for the Leukemia & Lymphoma Society over the past few years, please read Michele and Eric's "Rise" on Crowdrise -- Thank you.
We can totally do this by December 31st, but we need your help. Please donate and/ or JOIN OUR TEAM! We'll be holding contests, so you'll definitely want to keep checking back.
Follow the Matt Cwiertny Memorial Foundation on Twitter at @MattCwiertnyMF and you can follow me (Michele) at @MicheleCwiertny for contest announcements as well. :D
So why does this matter so much to my family and to me? Here's why we're so passionate about this:
Matt was a 22-year-old junior art director for Marshall Advertising, who loved the L.A. Galaxy soccer, A.S. Roma, the Flight of the Conchords, The Dandy Warhols, Jack’s Mannequin, The 88, and Will Ferrell movies, when he got a really bad case of mono. We thought he'd recovered until six months later when Matt started getting extraordinarily high fevers, his blood pressure dropped, and his blood counts cratered. His doctors were confounded, especially when they concluded it was not mono. It was only after he went into respiratory failure that his doctors at USC learned he suffered from EBV-induced Hemophagocytic Lymphohistiocytosis (EBV-HLH), a blood disorder affecting only 1 of every 1,000,000 persons (after a bone marrow biopsy, the doctors concluded he'd had mono earlier). While EBV-HLH is not cancer, it acts and is treated like a cancer. The disorder destroys healthy blood cells, and is treated with chemotherapy, and a bone marrow transplant, if necessary. EBV-HLH often induces lymphoma, which it did in Matt. One month after his EBV-HLH diagnosis, Matt learned he was also battling NK T-Cell lymphoma, one of the most aggressive and least researched blood cancers there is.
In December 2008, Matt received his bone marrow transplant. While it temporarily put him in remission, his lymphoma returned in February 2009, and in June 2009, Matt learned it had returned in the form of an inoperable brain tumor. After chemo failed to put him in remission, Matt began radiation treatment. Before finishing it, he was readmitted to the City of Hope in late September 2009. At that time, Matt was in a weakened state, with his EBV levels extraordinarily high that it was debilitating to his liver and kidneys. Unfortunately, the doctors were unable to administer any treatment that could reverse the affects of the EBV and its impact on Matt’s vital organs… And at midnight on October 3, 2009, he passed away with his family surrounding him.
Please help us fund medical research for EBV and EBV-associated diseases, including blood cancers. We need cures and NOW. Let's do this for Matt.
To Donate to the "Raising $5,000 for MCMF" fundraiser on Crowdrise, click HERE.
To learn more about the Matt Cwiertny Memorial Foundation and what we want to accomplish, please visit: http://www.mattcwiertnymemorialfoundation.com
Thank you.
P.S. And to read more about what Matt's friends and family have accomplished while raising funds for the Leukemia & Lymphoma Society over the past few years, please read Michele and Eric's "Rise" on Crowdrise -- Thank you.
Join Us on 10/15 at Fountain Bowl. Benefits the Matt Cwiertny Memorial Foundation
Join us at the Fountain Bowl Bowling Alley in Fountain Valley, CA on Saturday, October 15th! We're holding our 2nd Annual Bowl-A-Rama from 5:30 pm to 8:30 pm and it wouldn't be the same without you! Awesome, right? We're going to have 50/50 raffles, silent auction items, door prizes, bowling awards, good friends, food, and lots of fun!
All proceeds benefit the Matt Cwiertny Memorial Foundation, so grab 4-5 of your friends for your amazing team and get ready to blow us all away with your stellar bowling technique.
Place: Fountain Bowl Bowling Alley
Location: 17110 Brookhurst Street
Fountain Valley, CA 92708-3604 (714) 963-7888
Date: Saturday, October 15th, 2011
Time: 5:30 pm - 8:30 pm
Ticket Price to Bowl: $30 a person.
And hey, if you can't make it to the Fountain Bowl Bowling Alley on October 15th, then feel free to Donate HERE on Crowdrise and help us raise funds for the Matt Cwiertny Memorial Foundation. We'll definitely love you for that too. :)
Thank you so much!
All proceeds benefit the Matt Cwiertny Memorial Foundation, so grab 4-5 of your friends for your amazing team and get ready to blow us all away with your stellar bowling technique.
Place: Fountain Bowl Bowling Alley
Location: 17110 Brookhurst Street
Fountain Valley, CA 92708-3604 (714) 963-7888
Date: Saturday, October 15th, 2011
Time: 5:30 pm - 8:30 pm
Ticket Price to Bowl: $30 a person.
And hey, if you can't make it to the Fountain Bowl Bowling Alley on October 15th, then feel free to Donate HERE on Crowdrise and help us raise funds for the Matt Cwiertny Memorial Foundation. We'll definitely love you for that too. :)
Thank you so much!
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