Thursday, December 29, 2011

Over $2K Raised So Far for MCMF Holiday Challenge on @Crowdrise

Hey everyone,

Thank you so much for helping our MCMF Holiday Challenge reach the $2000 mark! We couldn't do this without you -- Thank You!! For those of you reading about this challenge for the first time, the MCMF Holiday Challenge is the Matt Cwiertny Memorial Foundation's newest project on CrowdRise.

Our next goal? To hit the $3,000 milestone! We can do this. Let's save lives and help find a CURE... Every bit will definitely make a difference.

We're so excited about this challenge, as Mozilla Firefox will be donating $25,000 to the charity that raises the most funds on CrowdRise between December 13th and January 11th... Soooo, we definitely need everyone's help. Yep, everyone's. Please join our team. Please donate. Please join our team AND donate AND tell everyone in the world all about it too. 
 



Thank you again for your amazing support! You all totally ROCK. xo


Michele Cwiertny




Monday, December 26, 2011

Over $1800 Raised So Far for MCMF Holiday Challenge on @Crowdrise

Hey everyone,

Hope you're having a wonderful Holiday Season!

Just letting you know that our MCMF Holiday Challenge on CrowdRise has hit the $1800 mark -- Awesome! We're so, so close to $2,000... Who is going to help us reach that incredible milestone? :)

We're so excited about this challenge, as Mozilla Firefox will be donating $25,000 to the charity that raises the most funds on CrowdRise between December 13th and January 11th... Soooo, we definitely need everyone's help. Yep, everyone's. Please join our team. Please donate. Please join our team AND donate AND tell everyone in the world all about it too. 

Thank you very much for your support! Without you, the Matt Cwiertny Memorial Foundation wouldn't be able to save lives and help find a CURE.


Thank you!!

Michele








 


Thursday, December 22, 2011

Over $1500 Raised So Far for MCMF Holiday Challenge on @Crowdrise

So Awesome!

Thanks to our very generous donors, our MCMF Holiday Challenge, which benefits the Matt Cwiertny Memorial Foundation, has reached the $1500 mark! So, so great. 

OK, so here's the new goal: Let's raise another $1K for the MCMF Holiday Challenge by this Sunday- Yay! Please help us save lives & find a CURE.

We're so excited about this challenge, as Mozilla Firefox will be donating $25,000 to the charity that raises the most funds on CrowdRise between December 13th and January 11th... Soooo, we definitely need everyone's help. Yep, everyone's. Please join our team. Please donate. Please join our team AND donate AND tell everyone in the world all about it too. :D


Thank you so much for your amazing support. You are all incredible people.
MC


Tuesday, December 20, 2011

Over $1K Raised So Far for MCMF Holiday Challenge on @Crowdrise

Awesome! Our MCMF Holiday Challenge is off to a good start... We've raised over $1,000 so far and we have 23 days to go! Let's keep going and help find a CURE for EBV and EBV-Associated diseases, which include blood cancers. We can do this.

The Matt Cwiertny Memorial Foundation needs your help. Join our team. Donate. Join our team and donate. Tell everyone in world all about this so we can make a difference.

To help the Matt Cwiertny Memorial Foundation win the Mozilla Firefox Challenge and the $25,000 donation toward our 2012 grant, please click here:

MCMF HOLIDAY CHALLENGE

Thank you so much for your amazing support!

MC

P.S. To find out more about our MCMF Holiday Challenge, please click the link above or read the previous post on this blog. Thank you! 











Monday, December 19, 2011

The MCMF Holiday Challenge on @Crowdrise

Please help the Matt Cwiertny Memorial Foundation win $25,000!

Mozilla Firefox will be donating $25,000 to the charity that raises the most money on Crowdrise between December 13th and January 11th... and how AWESOME would it be if the Matt Cwiertny Memorial Foundation won?! We can do this!!

PLEASE HELP! Join our team. Donate. Join our team and donate. Get your friends and family to join in and donate. We need everyone's help. Let's make certain our 2011 grant makes an impact and saves lives... and please, please help us start NEXT year's grant off with $25,000! Amazing, right?

Please help the Matt Cwiertny Memorial Foundation by donating here:
MCMF Holiday Challenge

So why does this matter so much to us? Here's why we're so passionate about this:

Matt was a 22-year-old junior art director for Marshall Advertising, who loved the L.A. Galaxy soccer, A.S. Roma, the Flight of the Conchords, The Dandy Warhols, Jack’s Mannequin, The 88, and Will Ferrell movies, when he got a really bad case of mono. We thought he'd recovered until six months later when Matt started getting extraordinarily high fevers, his blood pressure dropped, and his blood counts cratered. His doctors were confounded, especially when they concluded it was not mono. It was only after he went into respiratory failure that his doctors at USC learned he suffered from EBV-induced Hemophagocytic Lymphohistiocytosis (EBV-HLH), a blood disorder affecting only 1 of every 1,000,000 persons (after a bone marrow biopsy, the doctors decided he'd had mono earlier). While EBV-HLH is not cancer, it acts and is treated like a cancer. The disorder destroys healthy blood cells, and is treated with chemotherapy, and a bone marrow transplant, if necessary. EBV-HLH often induces lymphoma, which it did in Matt. One month after his EBV-HLH diagnosis, Matt learned he was also battling NK T-Cell lymphoma, one of the most aggressive and least researched blood cancers there is.

In December 2008, Matt received his bone marrow transplant. While it temporarily put him in remission, his lymphoma returned in February 2009, and in June 2009, Matt learned it had returned in the form of an inoperable brain tumor. After chemo failed to put him in remission, Matt began radiation treatment. Before finishing it, he was readmitted to the City of Hope in late September 2009. At that time, Matt was in a weakened state, with his EBV levels extraordinarily high that it was debilitating to his liver and kidneys. Unfortunately, the doctors were unable to administer any treatment that could reverse the affects of the EBV and its impact on Matt’s vital organs… And at midnight on October 3, 2009, he passed away with his family surrounding him.

Please help us fund medical research for EBV and EBV-associated diseases, including blood cancers. We need cures and NOW. Let's do this.

To learn more about the Matt Cwiertny Memorial Foundation and what we want to accomplish, please visit: http://www.mattcwiertnymemorialfoundation.com


Thank you!

Thursday, September 29, 2011

The Matt Cwiertny Memorial Foundation is now on Facebook!

The Matt Cwiertny Memorial Foundation is now on Facebook!

https://www.facebook.com/mattcwiertnymemorialfoundation

Be sure to "Like" the page and keep up to date on what the Foundation is doing to help fight EBV and EBV-associated diseases. Thank you so much! 

Where you can find the Foundation:


Website: http://www.mattcwiertnymemorialfoundation.com

Crowdrise: http://www.crowdrise.com/mattcwiertnymemorialfoundation


Twitter: @MattCwiertnyMF


Facebook: https://www.facebook.com/mattcwiertnymemorialfoundation

Thursday, September 15, 2011

New Goal: Raising Another $5,000 for the Matt Cwiertny Memorial Foundation

We want to raise an additional $5,000 toward this year's medical research grant for EBV and EBV-associated diseases, which include blood cancers.

We can totally do this by December 31st, but we need your help. Please donate and/ or JOIN OUR TEAM! We'll be holding contests, so you'll definitely want to keep checking back.

Follow the Matt Cwiertny Memorial Foundation on Twitter at @MattCwiertnyMF and you can follow me (Michele) at @MicheleCwiertny for contest announcements as well. :D

So why does this matter so much to my family and to me? Here's why we're so passionate about this:

Matt was a 22-year-old junior art director for Marshall Advertising, who loved the L.A. Galaxy soccer, A.S. Roma, the Flight of the Conchords, The Dandy Warhols, Jack’s Mannequin, The 88, and Will Ferrell movies, when he got a really bad case of mono. We thought he'd recovered until six months later when Matt started getting extraordinarily high fevers, his blood pressure dropped, and his blood counts cratered. His doctors were confounded, especially when they concluded it was not mono. It was only after he went into respiratory failure that his doctors at USC learned he suffered from EBV-induced Hemophagocytic Lymphohistiocytosis (EBV-HLH), a blood disorder affecting only 1 of every 1,000,000 persons (after a bone marrow biopsy, the doctors concluded he'd had mono earlier). While EBV-HLH is not cancer, it acts and is treated like a cancer. The disorder destroys healthy blood cells, and is treated with chemotherapy, and a bone marrow transplant, if necessary. EBV-HLH often induces lymphoma, which it did in Matt. One month after his EBV-HLH diagnosis, Matt learned he was also battling NK T-Cell lymphoma, one of the most aggressive and least researched blood cancers there is.

In December 2008, Matt received his bone marrow transplant. While it temporarily put him in remission, his lymphoma returned in February 2009, and in June 2009, Matt learned it had returned in the form of an inoperable brain tumor. After chemo failed to put him in remission, Matt began radiation treatment. Before finishing it, he was readmitted to the City of Hope in late September 2009. At that time, Matt was in a weakened state, with his EBV levels extraordinarily high that it was debilitating to his liver and kidneys. Unfortunately, the doctors were unable to administer any treatment that could reverse the affects of the EBV and its impact on Matt’s vital organs… And at midnight on October 3, 2009, he passed away with his family surrounding him.

Please help us fund medical research for EBV and EBV-associated diseases, including blood cancers. We need cures and NOW. Let's do this for Matt.

To Donate to the "Raising $5,000 for MCMF" fundraiser on Crowdrise, click HERE.

To learn more about the Matt Cwiertny Memorial Foundation and what we want to accomplish, please visit: http://www.mattcwiertnymemorialfoundation.com

Thank you.

P.S. And to read more about what Matt's friends and family have accomplished while raising funds for the Leukemia & Lymphoma Society over the past few years, please read Michele and Eric's "Rise"   on Crowdrise -- Thank you.


 

Join Us on 10/15 at Fountain Bowl. Benefits the Matt Cwiertny Memorial Foundation

Join us at the Fountain Bowl Bowling Alley in Fountain Valley, CA on Saturday, October 15th! We're holding our 2nd Annual Bowl-A-Rama from 5:30 pm to 8:30 pm and it wouldn't be the same without you! Awesome, right? We're going to have 50/50 raffles, silent auction items, door prizes, bowling awards, good friends, food, and lots of fun!

All proceeds benefit the Matt Cwiertny Memorial Foundation, so grab 4-5 of your friends for your amazing team and get ready to blow us all away with your stellar bowling technique.

Place: Fountain Bowl Bowling Alley

Location: 17110 Brookhurst Street
Fountain Valley, CA 92708-3604 (714) 963-7888

Date: Saturday, October 15th, 2011
Time: 5:30 pm - 8:30 pm

Ticket Price to Bowl: $30 a person.
 
And hey, if you can't make it to the Fountain Bowl Bowling Alley on October 15th, then feel free to Donate HERE on Crowdrise and help us raise funds for the Matt Cwiertny Memorial Foundation. We'll definitely love you for that too. :)

Thank you so much!

Tuesday, March 29, 2011

Benefit Concert Featuring The 88

Hey, everyone!

The Matt Cwiertny Memorial Foundation is active and ready to hold its first official fundraising event! It's a benefit concert, featuring our good friends, The 88. Proceeds from the concert and silent auction will help the MCMF raise funds to fight the Epstein-Barr Virus and EBV-associated diseases. Join us on Saturday May 7th, 2011. Doors open at 5pm. It's ALL AGES. It's only $20. AND it's gonna be GREAT!


If you would like to help us out by donating a silent auction item, please let us know! That would be amazing. Thank you!


BUY YOUR $20 TICKETS AT: http://is.gd/PDUgHO




From The 88's Event page:
All proceeds from the event will aid the Matt Cwiertny Memorial Foundation in their efforts to support research for a cure of EBV and EBV - associated diseases.


Time: Saturday, May 7 · 5:00pm - 9:00pm

Location: The Echo · 1822 W Sunset Blvd · Los Angeles, CA

5pm doors open

6pm Taylor Locke & The Roughs

7pm The 88

Matt was a fan of The 88 and a dear friend to the band. He passed away at 24, and we are doing everything we can to honor his memory and help raise awareness about EBV. Come out and enjoy an evening of music, and help us raise money for the Foundation in his name.

Matt Cwiertny was a wonderful and vital 24-year-old young man who fought to overcome an immune system disorder that made him vulnerable to the Epstein-Barr Virus (EBV). Because there is not a vaccine for EBV, EBV overwhelmed Matt’s immune system on many occasions, leading him to develop EBV-Hemophagocytic Lymphohistiocytosis (HLH). HLH, also known as hemophagocytic syndrome, is a disorder of unregulated activation of lymphohistiocytic cells that results in hemophagocytosis, hypercytokinemia, and multi-organ (e.g., spleen, liver, lung, brain, or other vital organs) dysfunction, which without early treatment results in death. After a number of very severe battles with EBV-associated HLH, Matt developed non-Hodgkin’s NK T-cell lymphoma (cancer). In an attempt to cure his EBV–associated cancer, he underwent numerous rounds of chemotherapy and ultimately a Bone Marrow Transplant at The City of Hope in Duarte, CA, in late 2008. Sadly, in mid-2009, the disease returned and Matt became seriously ill with NK-T-cell brain lymphoma, which necessitated several rounds of brain radiation. While fighting a very severe episode of EBV-HLH, and just after completing a dozen sessions of brain radiation therapy that significantly weakened his immune system, Matt succumbed to his extremely rare EBV-associated diseases and passed away on October 3, 2009. 

The mission of the Matt Cwiertny Memorial Foundation is the cure of EBV and EBV-associated diseases. The charitable and primary purpose of the Foundation is to raise funds to accomplish medical research needed to cure EBV and EBV - associated diseases, with emphasis upon cures for EBV-HLH and NK T-cell lymphoma. A secondary goal of the Foundation is raising public awareness of all EBV-associated diseases and the need to find cures for these rare and terrible diseases.

*****
UPDATE: Fixed the link for the MCMF website.

Saturday, January 29, 2011

"Shaving My Head To Kick Blood Cancer's Butt!"

Hey Everyone,

An Australian friend of mine, Jaimes Thorpe, is trying to raise $5,000 for Leukemia research. She's participating in the World's Greatest Shave in Australia and is raising funds on Crowdrise for the Leukemia & Lymphoma Society (LLS) here in the US. Once she reaches her goal of $5K, she'll shave her head, so definitely check out the project, "Shaving My Head To Kick Blood Cancer's Butt!" 

I'm helping her out and have my own page, so you'll see I'm a team member when you click the link. Please help her reach her goal if you can, as it such an amazing cause! Thank you.

Michele
P.S. She mentions our "Raising $60K" project, which ended in December, but she's still raising funds for LLS -- so please help. Thanks!

Here's the link again: I Want to Kick Blood Cancer's Butt



Jaimes Thorpe wrote -

OMG ARE YOU *&^% SERIOUS??? That is the usual response when I tell people what I am planning - the answer is YES, I am quite serious ... please read on!


I have had long hair all my life (except for a brief period when I was convalescing after getting thrown from a horse ... long story, tell you another time) and I have always considered my hair to be my best feature. I love having long hair - I love playing with it, twirling with it, dying it, putting it up ... all of those girlie things that girls normally love. That one time I *did* have my hair short, I hated it, even though lots of people told me it really suited me.


... but you know what? It's only hair. It will grow back (I hope!) and if the thought of watching me "sacrifice" such a big part of what makes me, me can motivate people to donate then I'll call that a win :)


The World's Greatest Shave is an Australian fundraising event held every year in March. My official fundraising page can be found at http://my.leukaemiafoundation.org.au/jenjam


I am aiming to raise $5000 - if I raise less, my hair will only be coloured. This gives people incencitve to donate (I hope) and helps me raise the most money possible in the 4-odd months that I have to fundraise :)


I have been given permission to link this project to the campaign to raise $60000 in memory of Matt Cwiertny. Matt's family and friends are working to raise $60,000 in Matt's name in association with the Leukemia & Lymphoma Society's Light the Night Walks and with the support of Crowdrise. If we raise $60,000, we will be able to direct the funds to an LLS researcher who is working to find cures for Epstein Barr Virus (EBV) induced lymphomas. While researchers know there is a connection between EBV and lymphoma, they are not sure how EBV causes lymphoma and have not found a way to effectively treat EBV or NK T-cell lymphoma, which Matt suffered from.


Over the coming months I will be uploading a LOT of photos (and maybe a video or two) of my hair from different periods in my life, and I plan to video the actual shaving event in March - trust me, there will be tear ... and alcohol. There will *definitely* be alcohol :|


If you think it's amusing to watch a grown woman crying while having her head shaven OR if you just want to help me KICK BLOOD CANCER'S BUTT please donate what you can afford, join the team, and support me in any way you can ♥